
What CHIME has achieved till date
Over 500 surgeries were supported by CHIME in the last 6
years. While MIOT provides the initial capital,
state-of-the-art infrastructure and the team of competent,
committed doctors, a lot of support and resources have been
forthcoming from organizations, various communities and
individuals from different parts of India and the world.
This has been our silver lining.
2013
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Shuaib Hussain aged 3 Years from Jeshore,
Bangladesh
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Health Issue: Rheumatic Heart Disease, Mitral
valve regurgigation, S/p Mitral Valve repair,
congestive heart failure requiring open heart
surgery and mitral valve replacement
Shuaib Hussain from Jeshore, Bangladesh was 3 years old when
his mother and his grandfather, a farm labourer decided to
bring him to India for treatment in Aug 2012. The child was
too weak to breathe and he had travelled by train from
Kolkatta after crossing the border. For a little money
Shuaib’s father had mortgaged his Auto rickshaw. The story
goes that the child was taken for treatment to Kolkatta and
as his condition did not improve they were told of hospitals
down south. They carried the child who was pale and listless
by then, and finally came to MIOT Hospitals.
Shuaib Hussain was diagnosed with Congenital Mitral
Regurgitation
Large PDA with LR Shunt with Moderate PAH
Surgery proposed - PDA Closure, valve repair &
Replacement
Approximate cost - 1,80,000/-
As a foreign national and the urgency of the matter, there
was no time for publishing an appeal. On line Mails were
sent to donors with required details - their prompt response
helped us to raise funds and there were volunteers who
booked their return tickets as well.
Suddenly in March 2013, Shuaib and his parents returned -
the child was in a critical state. Doctors diagnosed this
time as Rheumatic Heart Disease, Mitral valve
regurgitation, S/p Mitral Valve repair, congestive heart
failure. Shuaib required an urgent redo open heart
surgery and mitral valve replacement. The cost of this
with surgery, investigations and PO care, including hospital
stay could be in the range of Rs.3,50,000/-. Again we
knocked on the doors of our patrons - so compassionate and
caring. This time the parents came with a little funds which
would be 25% of the cost.
The doctors were initially skeptical as the child was
critical, put on ventilator on arrival for a week before
surgery could be undertaken. But skill and commitment of
our team of doctors, the care and commitment at the PICU and
the compassion of all our well-wishers helped Shuaib make a
steady, slow but wonderful recovery.
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Athimuthu aged 7 years from Madurai, Tamilnadu,
India.
-
Health Issue: Chemoport insertion and treatment
for infection
At 7 years, Athimutu had an irritation in the eye. Constant
visits to the ophthalmologist could not help and finally was
diagnosed as leukemia. He had had treatment in Madurai and
later hearing of MIOT Hospitals the parents had come to
Chennai. Athimuthu’s Father works as a clerk in an office in
suburban Madurai. Last month the parents sold all they had,
to do a bone marrow transplant.
The child was recommended a Chemoport insertion and
treatment for infection. For the last lap of Chemotherapy
the parents required an estimated amount of Rs.50000.
CHIME Officers meet Heads of Units to work out cases which
may need support financially. Thereafter Dr. Chezhian had
referred this patient for aid. CHIME contributed Rs.50,000/-
towards the procedure as was detailed in the estimate for
chemotherapy.
2012
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Vasantha Krishnan from Chennai, Tamilnadu, India
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Health Issue: Tetrology of Fallot (ToF), severe
infundibular, valvar and supravalvar PS
requiring Intra Cardiac Repair.
Vasantha Krishnan's father works at an eatery in Moolakadai,
Chennai. Since the delivery of her baby, the wife has not
been working due to child’s health. Vasantha Krishnan was
diagnosed with a heart problem.
His father who was told about MIOT Hospitals brought him to
the hospital and the child was put on medication. When
medication was alone not sufficient the doctors suggested
surgery. The surgery costs were estimated to be around
Rs.1.6 Lacs. CHIME collected funds through Appeal in news
prints and aided Venkatachalam for both surgeries.
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Anburoja aged 13 years from Mathumadakkai
Village, Ariyalur District, Tamilnadu, India
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Health Issue: Diagnosis - Severe Post Subclavian
Coarction of Aorta, PDA requiring Coarctation
Stenting + PDA Device Closure
Studying in 7th standard, Anbu Roja has a hearing and speech
impairment. She was diagnosed with severe Post Subclavian
Coarction of Aorta, PDA requiring Coarctation Stenting & PDA
Device Closure. She was getting treated at Egmore Children’s
hospital with medication. She was directed to have surgery
but being financially low and the child also being very weak
the parents had not gone ahead.
It was at a collectors meeting that the child and parents
were encouraged by the collector to take up the surgery and
directed to MIOT. The surgery cost was estimated to be Rs.
1Lac and CHIME aided treatment by collections made through
appeal and Anburoja was treated successfully.
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Kannan aged 23 years from Chennai, Tamilnadu,
India
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Health Issue: Valve problem - Surgery proposed -
Baloon mitral valvotomy
Kannan used to have constant cold and cough and pain in the
chest. Although the pain in the chest was diagnosed as
muscular pain, the Echo identified a valve problem. Baloon
mitral valvotomy surgery was proposed to treat the
abnormality and the cost for same was estimated about
Rs.90000.
However, Kannan who did not have a sound financial
background managed to claim Rs.35000 through government fund
and the gap of Rs.55000 was offered by CHIME from the funds
available as it was a case of emergency.
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Maruthapandi, a new born from Ariyalur,
Tamilnadu, India
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Health Issue: Valve problem - Surgery proposed - Baloon mitral valvotomy
Maruthapandi is a premature baby and was admitted for nearly
a month in hospital thereafter in incubation in his place of
birth. Diagnosed with heart problem but doctors assured that
child can be medically managed, and care should be taken and
that the child could be operated after 2 years. However
after a year when the child fell ill the doctors referred
them to MIOT Hospitals and Dr. Robert diagnosed with
Tetralogy of fallot requiring Intra Cardiac Repair.
Maruthapandi’s parents were not financially comfortable for
a surgery as they made low wages as farmers which was also
to be given up for their stay in Chennai. As the parents
could not afford for the surgery which was estimated to cost
Rs.1.6 Lacs, they were referred to CHIME by Dr. Robert.
CHIME aided the surgery and Maruthapandi was fit and fine
when returned with his parents to their hometown.
2011
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Tora Mondal from Kolkatta, India
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Health Issue: DORV, Complete AV Canal Defect,
requiring PA Banding
Tora’s father is a car driver in Kolkatta. Tora was
identified with the problem which was detected during
sonography but the parents were not told. The child also had
pneumonia after birth and was treated.
Friends of Tora's father who worked in a stainless steel
shop in Chennai told him about CHIME and MIOT Hospitals when
they knew the child was suffering. They also asked him to
bring his child here to Chennai and everyone played a
significant role on raising funds. The parents immediately
came to Chennai with whatever money they had.
The child was detected with DORV, Complete AV Canal Defect
which required PA Banding. The treatment cost was estimated
to be around Rs.1,50,000.
They collected some funds from local contacts here and CHIME
aided them with the rest to complete the treatment required
to cure Tora’s ailment.
2010
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Venkatachalam aged 2.5 months from Namakkal,
Tamilnadu, India
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Health Issue: Truncus Arteriosis - Advised Open
heart surgery and conduit repair
The baby was referred to a hospital in Coimbatore by the
relatives and friends and was diagnosed with a heart
ailment. The costs were unaffordable for treatment and as
the parents were unable to get any concession they were
unable to move further.
Just at that time the ad in the paper read about the free
camp at Chennai at MIOT Hospitals and they came here for a
checkup. Dr. Robert referred them to CHIME. The child was
identified with a complication referred as Truncus
Arteriosis and was recommended to undergo Open Heart Surgery
and Conduit repair. The treatment was estimated about
Rs.2.5Lacs. Recently Venkatachalam returned to MIOT
Hospitals. This time he required a severe aortic
regurgitation s/p truncus arteriosis repair advised early
open heart surgery.
CHIME collected funds through appeal in newsprints and aided
Venkatachalam for both surgeries.
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Karuppusamy & Vennila aged 7 & 3 years
respectively from Virudunagar, Tamilnadu, India
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Health Issue: Congenital heart problems
Selvam is a building laborer and with two ill children the
mother could no more contribute to the income. Selvam left
the family and went to Mumbai as he was assured better wages
in an eatery.
Selvam’s family had a history of congenital disease. Both
children of Selvam, Karupusamy and Venilla had heart
disease.
Venilla’s condition seemed critical and hence the first
surgery was done with support from CHIME in order to avoid
delay by waiting for funds through government insurance
plans.
They were diagnosed with Tetralogy of Fallot (ToF),
pulmonary atresia, S/p Right Unifocalisation. Karuppusamy
required a second surgery as well.
CHIME supported both children with financial assistance
required for the surgeries.
2009
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Lavanya aged 23 from Chennai, Tamilnadu
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Health Issue: Underwent Tetralogy of Fallot (ToF)
and required implant
Lavanya has been adopted by her relatives in Chennai as her
parents were very poor and she was a sick child. They
realized she had a hole in the heart and was operated at
another city hospital in 2008. But when the problem recurred
she had come to MIOT.
Although she has had a Tetralogy of Fallot (ToF) done in
2008, she was requiring an implant costing about
Rs.1,75,000/-. Lavanya walked into CHIME office and asked if
she could get any help. She was also trying all her contacts
to get part of the funds and managed to procure 75% of the
estimated cost.
CHIME took care of the rest and offered 25% of the
contribution for the implant. Lavanya is married today and
had even visited the hospital to invite all for her wedding.
Dinesh was about 4 months old when brought to MIOT
Hospitals. Dinesh’s parents were very poor, daily wage
earners with four children. Dinesh was youngest of them all.
He was diagnosed with AV canal repair, the treatment for
which was estimated about Rs. 70,000/ for the procedure. The
child developed complications which sometimes happen due to
the invasive treatment and treating this condition again
required a small surgery to the urethra and pediatric care.
All this was again supported by CHIME.
Five years down the line, Dinesh and his parents visited
MIOT Hospitals for a checkup and paid a visit to CHIME as
well. It was wonderful to see the little one sprightly and
active.
2008
-
Anbarassan aged 10 Years from Pudukottai,
Tamilnadu, Chennai
-
Health Issue: Tetralogy of Fallot (ToF) with
pulmonary atresia - it was felt that he required
three stages of surgery.
Anbarassan was suffering from recurring condition of
breathlessness, with nails turning black when his heart
stopped functioning etc. His parents were daily wage earners
in a farm land in Pudukottai.
Anbarassan was advised for Tetralogy of Fallot (ToF) with
pulmonary atresia and was recommended that he required three
stages of surgery. The entire treatment and surgery cost was
estimated to be in the range of Rs.5 lakhs. As it was a
staggered surgery in three phases, CHIME was able to garner
funds through well-wishers, appeals etc.
Anbarassan had come for a checkup last September and is
doing well and very happy.
-
Vignesh aged 14 Years from Kancheepuram,
Tamilnadu, India
-
Health Issue: Tricuspid Valve repair & Valve
replacement
Vignesh’s father is a daily wage earner in a small factory
in Kancheepuram, processing foods. His mother is a home
maker. Vignesh was diagnosed with health issues that
demanded Tricuspid Valve repair and Valve replacement. The
total cost for treatment was estimated around Rs.2,50,000.
This case was our first appeal in The Hindu and we collected
75% of the cost. The rest was borne by the parents. Vignesh
is a very active teenager now and has joined engineering
college.
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Anuradha aged 17, from Panruti, Tamilnadu:
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Surgery: Pericardial Patch closure of Ostium
Secundum ASD
Anuradha hails from a poor family in Panrutti Taluk where
her father works as a daily wage earner. When Anuradha was a
baby, she was diagnosed to have a congenital defect for
which an open heart surgery was necessary. Sadly the family
could not afford it and the thought of serious surgeries
like this could not even be imagined by this family due to
their financial constraints, the danger and the seriousness
of it.
Lately a relative who visited them from Chennai mentioned to
them about CHIME. This is how Anuradha and her parents came
to MIOT Hospitals. As she was over 16, she was not eligible
for government funds. This pushed the family to sell
whatever jewellery they had and borrowed a little money as
her surgery was going to cost around Rs1.5 lakhs.
CHIME came forward and helped Anuradha through funds
received from a Trust, through individual donors who
responded to an appeal in the papers and finally the
difference filled in from funds in CHIME.
And now after her successful surgery, Anuradha comes to MIOT
Hospitals & CHIME for her regular check ups and it’s
heartening to note that she has now resumed College.
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Baby of Radha, 19 days, from Dindugul,
Tamilnadu:
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Surgery: Arterial switch operation. PTFE Patch
closure of VSD
Baby of Radha was hardly 18 days old when she was rushed to
Hospital. The baby was diagnosed with heart ailment a few
days before the delivery when the mother Radha underwent a
routine scan. Radha & her husband Harish who is a
paraplegic, decided to go through with the delivery and
immediately after birth they travelled from Dindugul to a
prominent Hospital in Bangalore but were told that they did
not have facilities for neonatal surgery and hence were
directed to MIOT Hospitals.
Radha's little one is the second one born to these parents
who are consanguineously married. They have a 5 years old
daughter. Radha's husband works as a welding mechanic.
The estimated cost of this surgery was to be anything in the
range of 2 lakhs. The surgery took place when the baby was
just 23 days old and had to remain in the ICU for 8 days
considering the critical nature.
The unfailing determination and anguish faced by the parents
was very perceptible. CHIME came to their rescue in such an
emergency situation.
Today we are happy that the child is back home and was named
Rakesh while at the hospital itself.
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Ramesh, approximately 14 years from Kolathur,
Thiruannamalai Taluk, Tamilnadu:
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Procedure: Repair of Pentalogy, Pericardial
Patch, Reconstruciton of Pulmonary Valve,
Pericardial Patch closure of ASD
Ramesh was identified as a child who requires immediate
medical attention during the Thiruannamalai Heart Camp
conducted by MIOT Hospitals and CHIME on August 29th 2008.
Ramesh is the only child and his mother who is a widow works
as an agricultural labour.
Ramesh's mother an illiterate and ignorant - was unaware of
her child's complicated condition. Because of her poverty
she could do nothing when she realised that something was
wrong with the child when the child suffered with swelling,
lack of appetite, listlessness, etc... at the age of 5.
Ramesh in spite of all these odds was a determined student
at 10th standard in a government school.
Ramesh mother understood the critical condition of her son
only during their visit to the Thiruannamalai Heart Camp.
Later Ramesh was brought to MIOT through CHIME and now after
his surgery he has been advised rest for two months before
he can rejoin his school.
Like Ramesh, five other children of whom 2 were girls, all
from the Thiruannamalai camp came to Chennai for surgeries
and corrections that needed immediate attention. All of them
were blissfully unaware of their critical health condition.
Ray of hope
These are bright children, for whom a ray of hope is
necessary to spread light into their world and that of their
hapless families. Since these are mostly children from
underprivileged families they undergo years of suffering, of
constant illness, of ill health, of neglect, of being left
out of normal activities which children take part in, of
seeing the helpless look on the faces of their parents who
have no options but watch their child suffer.
This neglect is the result of fear of a vital surgery, the
cost which usually makes the parent avoid, withdraw, no
proper guidance regarding access to treatment. CHIME is
willing to conduct on request camps in districts of Tamil
Nadu for awareness regarding congenital heart disease,
identifying children with heart disease (which often goes
unnoticed with symptoms like constant cold, congestion,
respiratory problems etc), and to undertake the surgery if
the identified child/children are from families which have
no economic backing.